Lying down in bed in the hospital and it is torture!

Currently in a hospital in Tokyo and I’ve had these tubes around me for the Ph test since yesterday and I still have 7 hours left of torture. I cannot fathom how people do this honestly. This is like the worst day of my life literally. How inconveniently, of all the days in my life, my acid reflux seems to have gone on vacation and it is not as bad as 95% of my life. Wtf. What a troll.

Have to pay 50,000 yen for this test and worried it may not be worth it. I do not want an encore of this performance. Literally the longest 24 hours of my miserable life. Why is this so hard. I’m in the hospital and nurses come and say hello to me in my dire condition smiling like the sun and I just want to rain on their parade for no reason. Asked for painkillers or numbing medicine but nope, not possible. I had gone through car accidents that broke my arm and leg, even covid was a witch but this is a whole new level of abomination.

Sorry I’m rambling so much, it’s just really bad plus I have the sensor resting on my throat (LPR) and swallowing is like a hike in the mountains.

The only amusement I get here is being surrounded by 4 grandmas shouting at each other and having conversations through the dividers. The grandma next to me is adorable and cries “Yada!” Like a baby anytime a nurse comes to do any routine checks on her 😂. My doctor dropped by and told me I was the boss and to just hang in there. It will be over soon.

I’m lying down here with no wifi, I am reading a book about a terminally ill high school girl who wants to eat her classmate’s pancreas with tubes in my nose, throat down to my esophagus and stomach. My breakfast was yoghurt, broccoli and a huge sandwich that is too big to eat. A lot of this is exaggerated of course I do not mean any harm on anyone but myself 😂 Hope you guys are having a great day!

Edit: Hello everyone! Thank you for your support! The tube has been removed and I am sooo relieved and have been discharged. Only had to pay 36,000 yen. Yay!

27 comments
  1. I’m reading this waiting for a camera to be shoved down my throat and feeling anxious.

    But at least it’s not what you’re going through so I feel a little better, thank you.

  2. Ask the nurses for some pillows. But yeah those beds are hella uncomfortable. Got to spend a couple of weeks in them so far this year.

  3. Hope it’s over soon ❤️ hang in there!

    I had surgery 2 years ago and I remember the BACK PAIN from the bed 😩 I couldn’t sleep for most of the first night… I finally had enough and asked for the bed to be adjusted, the nurse kept saying it won’t be comfortable, but I insisted because I was so frustrated with my back pain… so I was sleeping sitting up basically, and it felt MUCH better.

  4. Keep fighting, you can do this!

    My back was never the same again after staying a week in hospital. Ask for some pillows or see if they have a heated blanket.

    *Hugs*

  5. 🥲 not them feeding me big ass riceballs and chicken post op when I cant even sit up to eat. My breakfast the next day was the same but it came with a thing of milk which I rightfully fucked up.

  6. I honestly had a childhood of this with UC.

    Now I’m in remission I pretty much swear I’d rather not be alive than go through it all again.

  7. I’m jealous. I had to endure that as a kid in the 1970s for 15 days with no technology to rant at random people. Still, I wish you the best.

  8. I was bedridden for over two weeks for cancer treatment at the age of 34 in the national cancer center here in Japan. I scarfed down close to 10-15 pills every morn/afternoon/evening with weekly blood tests. I had to have multiple enemas to take shits while dealing with drug-induced hepatitis as my liver couldn’t keep up with the toxicity of the infusions and medicine. I had full-head radiation treatments everyday for six days straight and watched my hair fallout soon after that. All in all I couldn’t keep any food down and lost close to 10 kilos in a two week time period. The bed I was in was one of four in the room and I listened to the moans of people dying from colon cancer (not much you can do for that one), people recovering from surgeries that took out parts of their lungs (don’t smoke, guys and gals), and another young guy suffering from late stage metastic melanoma (yeah, don’t go outside, the sun is trying to kill you. As miserable as it all was though, they saved my life and I am thankful every day that I can get up and walk around.

    You’re gonna be fine. Read a book.

  9. I’m sorry you’re going through all that and I hope the time passes soon. I’ve had tubes down my nose and throat on separate occasions but only for diagnostic purposes and it was over real quick, but I especially hated whenever they shoved it down my nose because it’d hurt and feel terrible and I cried pretty much every time. Not sure I can imagine having to keep it there for hours on end. Just knock me out, why don’t you?

    On another note, pain management in Japan just sucks. Absolutely, completely sucks. I’ve been having issues for a year now and trying to find ways to relieve my pain and headaches has been very difficult. Ended up going to a pain clinic hoping they might have a bit more of an idea, and was sorely disappointed when they didn’t do any sort of extra diagnostics, barely listened to my story, and were just like, want an injection? Sorry, no muscle relaxers for you! Sorry, we don’t even know which area to aim for, it’s all see-as-we-go! 5 star ratings on Google reviews.

    Your post was 3 hours ago so I assume you have 4 more hours to go. Wishing you all the best.

  10. I have GERD, so I get it. Sure, there are worse conditions to have, but there is something infuriating about a silent illness; it’s something that people without often don’t fully comprehend. The daily shackles around eating/dietary choices, the symptoms – even when you abide by the rules, and the obnoxious testing methods. Hang in there, you got this!

  11. I’m going in for cancer surgery in a couple of weeks. They’ve provided a detailed schedule of what will be happening for ten days (which they will translate into English, too). I’ll be in a shared room, of course, because it doesn’t cost extra.

    The TV costs 1000yen for 800 minutes, but it also comes with a DVD player, so I’m going to take a stack of DVDs I’ve been meaning to watch for ages. And I’ll take some books, and the hospital does have free Wifi.

    The nurse in charge of me told me I should get up and expand my chest as much as possible after the surgery to prevent pneumonia. (paraphrasing there).

    I’m confident that this cancer has been found early enough and we’ll knock it for six. It hasn’t metastasised like my eldest brother’s did, and now he’s no longer with us. The surgeon is very experienced, but sometimes he says words in English like he’s only ever read them, e.g. “drowsy” to rhyme with ‘rosy’.

  12. Had similar experience after my thyroid surgery last year. It was only for a full day then I was able to walk around the hospital after that.

    But that day after surgery felt like eternity, I could feel the time is so slow and the bed feels so uncomfortable that my back felt so uneasy and it hurt after few hours of laying down the bed. Best they can do is to give me 2 rounds of pain reliever for the whole day and thats it.

    When I went back to my room its all back to normal.

  13. omg yes shouting grandmas are amusing (if not a bit annoying)

    I had a grandma next to me while I was in the ER (forgot if it was when I got brought in or after I got admitted to the emergency ward)
    She was complaining about wanting to pee and the nurses kept telling her she had a diaper and her condition meant she can’t use the bathroom – and kept telling her if she didn’t use the diaper they’d have to use a catheter. I kinda felt for her since I also had bathroom issues (they gave me a container to use but it was hard when I was laying in bed and also the side effects of the pills I took meant I had difficulty peeing. Finally after like 15 hours I could take a wheelchair to the bathroom

    Hospitals are comfy af tbh, but I guess some things can be uncomfortable. Do you have an ECG and pulse oximeter hooked up? I had those and an IV drip (the IV site was so itchy!)

    Wishing you a speedy recovery

  14. Pain management is TERRIBLE in Japanese hospitals and medical treatment. I’ e been with a stuck kidney stone, and they gave me Tylenol and said they wouldn’t give anything else. I almost snapped and broke someons fingers.

  15. I’ve been in the hospital alot of times and i feel you. You can do it ! it helps to watch your comfort shows(prepared beforehand) – mine was friends yet i didnt get to laugh as much coz of the pain but atleast i get minutes of distraction. praying for time to go by quickly

  16. This post and the comment about butt washing have renewed my faith in Reddit. Possibly in humans.

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