Do any of you have experience with having or knowing someone with MCAS, Ehlers Danlos, or gastroperisis living in Japan? My wife and I are planning on moving to Japan, but I'm trying to get more info on potential Drs/clinics, and general experience from people who currently live in Japan so I can come better prepared. Also, I am curious how hard it is to get prilosec and zofran since I currently have to take both.
I've asked some chronic illness groups before, but unfortunately most of the answers I got were from people who said they have never been to Japan in their life and were going on about stuff like how hard it is to go soy free in Japan….except I tolerate soy extremely well.😅
by Frieren_phantomhive
2 comments
I don’t have any of those but I do have Crohn’s and I see a gastroenterologist who speaks English at st Luke’s international hospital in Tokyo. I don’t know much about your condition but just to provide some reassurance I used a company to help me set up my initial appointment since I don’t speak Japanese and my current doctor had no problems continuing my current treatment and prescribing me the same meds.
It might be worth googling to see if your current meds are legal/used in Japan as I know they have lots of restrictions?
I wish you luck. EDS where I’m from is so incredibly unknown and misunderstood. If it’s severe, I’d really look deeply into the care offered in Japan.